Cicily's Adventures: 6 year old portraits

Sunday, November 11, 2012

6 year old portraits

Cicily turned 6 on October 3 this year. These are her new, updated 6 year old portraits. We had to take them on 2 different days as Mom had to learn a few camera tricks, thus the wardrobe change. Love how all-around beautiful Cicily is.

8 comments:

Unknown said...: Great pictures!; November 11, 2012 at 11:03 PM
mashby said...: AHH! I haven't checked the blog in a while. Love the 6 yr old pics and that 6 yr old Cis!! You did great! :) Love you guys!; December 3, 2012 at 10:05 PM
Kami Milliron said...: She has the most amazing smile that seriously lights up a room ! You can't help but smile when you see her smile : ) I hope she had a great 6th birthday !; December 10, 2012 at 6:11 PM
Robin said...: These are beautiful! I love Cicily's smile!; January 11, 2013 at 12:55 PM
Anonymous said...: Awww she's so adorable !; May 13, 2018 at 4:56 PM
Anonymous said...: TBH she's much cuter than me XD; June 26, 2018 at 4:02 PM
Anonymous said...: Why is this here; April 11, 2024 at 8:27 AM
Anonymous said...: nice but not to be viewed; September 8, 2024 at 6:03 AM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.