Thursday Cicily went to school for her typical (as of the last month) 3 hours. This schedule has been working very well for her. She'll wake up a little late and lay in bed listening to music for a while. Then get ready for the day and have some Mom and Cis time reading or something. Then go enjoy her afternoon at school.
In the evening on Thursday Cis started feeling pretty blah. We snuggled for a bit in the green chair then she went to bed. She woke up and had meds once in the night.
Friday morning she wasn't feeling great still. She had some poop with a little blood in it, which is somewhat to be expected with her bowel issues. So, to cheer Cicily up, we gave Lucy a bath before school. As you can see, Cis LOVES this because her job is drying off a wet, funny looking puppy. Lucy doesn't love it so much, but Cicily gives her tons of dog treats after, so she puts up with it.
Cicily wasn't feeling great at school, but had plenty of distractions from friends and her loving nurse to keep her happy. She had a BM 5 times in the past 24 hours, so we were hoping that would make her feel better. But when she got home, we just ended up having a snuggle for the rest of the day. Thankfully Grandma was hanging out with us so she could get anything we needed/clean the house while Cicily and I snuggled. Sorry Grandma, I definitely got the better end of that deal. When Cicily really isn't feeling well only Mom snuggles or morphine can really make a difference.
Grandma helped realize that Cicily's stomach was full. So thankfully she has a g-tube and we can just pop it open and use a tube to get whatever is in there out. We drained 8 oz of fluid. Hospice said this was likely to happen. Towards the end your body can't use whatever food you're giving it (even when it's the most basic it can be and fed through your veins) and your body ends up storing it in other organs like the stomach and lungs. So not a good sign, but I'm grateful we can at least use the g-tube and drain her stomach.
Even with the new issues and obvious pain, Cicily still managed to smile and laugh on Saturday while she helped clean her room, have a visit from some special members of our church, and attend a family party and a friend party. At night we did another draining and got about 6 ounces. Surprisingly, her respiratory infection seems to be improving. Who knew it could do that without antibiotics?!