Wednesday, December 26, 2007
Cicily went for 30 minutes with her trach closed off and didn't turn blue once! Actually after her initial one second of switching breathing gears from her trach to her nose/mouth, she did great! She sat playing with one of her new Christmas toys babbling whenever she pleased like she'd been breathing from her nose/mouth instead of a tube since the day she was born! I had the pulse-ox machine hooked up and her oxygen saturation was mostly at 100% (normal level).
What does this mean??? Well, we're not exactly sure. It still means she could be decannulated (have her trach out) anywhere from the next few month to her 8 year old birthday. I know a couple children who have their trachs plugged all day long, but need them at night and won't be able to have a jaw distraction to grow their jaws and be decannulated until they're around 6-8 years old.
So, bottom line is Cicily could have her trach until she's 7, 8 or, older even. But, her jaw is growing!!!!!!
Friday, December 14, 2007
Tuesday, December 11, 2007
Before she was 3 years old Maya knew the basics of suctioning a trach and enjoyed teaching her cousins. She is currently Cicily's favorite person to receive oral/feeding therapy from and can actually tell you the directions to Cicily's weekly feeding therapy in Phoenix. (drive on the 202 past Arizona State University/Daddy, get off the 202, pass Hand City, drive down Thomas, to Cicily's therapy)
Perhaps the most super sisterly thing is the way Maya is starting to answer other children's questions about Cicily. At the park a young boy asked, "what's that on her neck?" Maya quickly came over and replied, "that's her trach because she can't breathe through her mouth." This past Sunday at church a young girl asked, "what happened to your baby?" Maya interrupted her Mom's typically clinical response with a proud, "that's Cicily, she's one year old now and is getting really big!" As a super big sister, Maya is already helping strangers see what a wonderful Baby Cis she has and that her most notable qualities are not her physical ones.
Wednesday, December 5, 2007
Cicily and Isabel trick or treating in style. They kept each other company while their siblings went to each house. They made for a great team actually - Cicily would chew on the packages of treats and then Isabel would eat the treats inside!
What a lucky girl!!! Cicily gets to snuggle and play with her wonderful Gramps!
We love this dress! (Thanks Epperson's who gave it to Maya!) Maya wore it all the time and I think Cicily looks adorable in it too. I'm thinking the bandanna is a great hearing aid accessory. (What do you think Mis- our BAHA accessory specialist??? :) )
The Fam with the Mickey Mouseter
This is one of Cicily's favorite pastimes. She loves to grab people's noses - whether it's her Grandpa in Disneyland or her Doctor in his office!