Cicily's Adventures: 8 month old Photo Shoot

Friday, June 22, 2007

8 month old Photo Shoot

Thanks for being a great photographer Grandpa!

3 comments:

Layton Clan said...: She is so beautiful Janalee. Oh my goodness. Love her beautiful big smile. She could charm anyone with that smile! Yes, let's DO get together for some frozen treat of some sort. Sure love you girl!

Jen; June 22, 2007 at 1:36 PM
Anonymous said...: Ummm....CUUUUUTE!!! :) Those are great, she is a natural in front of the camera!! I must have a couple of those!!

Love,
Aunt Mari; June 25, 2007 at 2:43 PM
Nammie said...: I am so lucky to be a Grandpa to this angel. Janalyn, thanks so much for all the time and love that goes into this blog.; June 28, 2007 at 8:21 AM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.