Cicily's Adventures: Cicily's 1 year old portraits

Monday, November 5, 2007

Cicily's 1 year old portraits

Thanks again to Cicily's personal photographer- Grandpa Snell for all the beautiful pictures!!!

8 comments:

Ondriawfd said...: I love the fourth one. She looks like she is having such a good time.; November 5, 2007 at 11:59 PM
Teri said...: No one can smile like Cicily! Lot of fun! I can't believe she is one already. Such a big girl.; November 6, 2007 at 12:36 PM
Layton Clan said...: She looks absolutley beautiful!

Happy One Cicily!!!; November 8, 2007 at 4:52 PM
Heidi Ann said...: What at precious little girl! I so love her tongue, she made me laugh. She looks happy and healthy!; November 8, 2007 at 9:17 PM
Chelsea said...: She looks so cute in all of her pictures. The bows turned out cute too. It was fun to see you guys in AZ!; November 15, 2007 at 12:11 PM
Heath said...: Absolutely adorable!; November 17, 2007 at 9:59 AM
Chelsea said...: I just showed Cade these pictures and he said, "Aw, she's so cute!"; November 20, 2007 at 5:45 PM
Grubbs Familly said...: I haven't seen all of these pictures. LOVE THEM!!; December 30, 2007 at 5:57 PM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.