This morning we tried out a rather unorthodox experiment. I've recently been putting my finger over Cicily's trach and she breathes quite well until she turns her head or swats my hand away, so my sister Ondria thought up a great idea to put tape over her trach vent to see how she does. So, this morning I was feeling adventurous and tried it out.
Cicily went for 30 minutes with her trach closed off and didn't turn blue once! Actually after her initial one second of switching breathing gears from her trach to her nose/mouth, she did great! She sat playing with one of her new Christmas toys babbling whenever she pleased like she'd been breathing from her nose/mouth instead of a tube since the day she was born! I had the pulse-ox machine hooked up and her oxygen saturation was mostly at 100% (normal level).
What does this mean??? Well, we're not exactly sure. It still means she could be decannulated (have her trach out) anywhere from the next few month to her 8 year old birthday. I know a couple children who have their trachs plugged all day long, but need them at night and won't be able to have a jaw distraction to grow their jaws and be decannulated until they're around 6-8 years old.
So, bottom line is Cicily could have her trach until she's 7, 8 or, older even. But, her jaw is growing!!!!!!
5 comments:
Way to go Cicily!! We are so proud of you!! We love you and can't wait to see you in a week. Keep up the good work.
I'm so happy the little trick worked. Love you guys!
That is wonderful. She is something extra special - just like her mama!!
WOW! I think this is worthy of excitement. Good job Cicily! Great idea too! Have you talked to doctors about your new news?
that is great news! Im glad she is doing so well.
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