Cicily's Adventures: Happy 4th Birthday Cicily!!!!

Sunday, October 3, 2010

Happy 4th Birthday Cicily!!!!

Happy Birthday sweet Cicily girl!

Thank you for letting us enjoy life with you for 4 years.

(cute birthday party pictures to come)

2 comments:

Meg said...: Happy Birthday, Cicily!; October 4, 2010 at 5:41 PM
Staci said...: Happy Birthday, she is such a JOY!!!I love the games you played & I would have chosen candy corn cupcakes too:); October 6, 2010 at 1:09 PM

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About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.