Cicily is scheduled to have another MRI of her brain on Dec. 2nd. Chris and I, Grandma DeEtte, and some of Cicily's therapists have noticed an increase in "shakiness" in Cicily in the last 9 months or so. She doesn't have enough fine motor control to sign as well as she once could. She is too wobbly to sit on any kind of chair without support. She still crawls, but in a more sitting posture and gets tired of crawling more quickly. Those are a few examples.
So, Cicily's neurologist (well, our favorite neurologist of the 6 or so she's seen) agreed it would be a good idea to have another MRI done. Maybe somehow eventhough she had no white matter to start with at 2 years old, it could somehow get worse?? Who knows!
We're anxious to see if the MRI shows any change in her brain in the last 2 years.
6 comments:
This is discouraging news to hear, but what a thrill to see the bday pics and know that Cicily is surrounded by loved ones who adore her!
Our prayers are with you.
What doesn't change is that beautiful smile and that great, big heart that is open to just about everyone! She is a beauty and has touched all of our lives for so much good!!
I know that's hard-With Emily things happened similar-she would learn something, do it really well, and then stop doing it. Like rolling, some sign language, etc. It was discouraging to not see the progress just continue upward! I really tried to just enjoy each thing she was able to do, even if it didn't last. Like I know you do. But it's hard!
We're praying for all of you!
J, keep us updated. I hope its just a little speed bump :) We love you guys, can't wait for Christmas!
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