Update

I last did a detailed update of Cicily 2 years ago.
http://cicilyspage.blogspot.com/2013/04/update-how-is-cicily-doing.html
So it's probably time to do another.

Cognitively: Cicily completed 2nd grade this year and is now (thanks to her brilliant school nurse) multiplying, doing fractions, reading grade appropriate texts, answering grade appropriate comprehension questions.  Pretty much right on track for her age.  It's just taking more patience to figure out all the amazing things she knows and can figure out.

Fine motor (hand control):  Cicily cannot manipulate toys at all anymore.  Her hands stay very tight in fisted balls most of the time.  She likes to put toys in and out of containers because it's something she can actually still do with her hands.

Gross motor (sitting, rolling, etc):  Cis can't sit up anymore at all.  She can roll over but it takes a great deal of effort.  She can't bear her own weight - her feet are always moving up and down if were were to attempt to hold her up and assist her in stepping.

Respiratory: Best winter yet!  So odd.  She probably only needed her mega antibiotic 2-3 times this year instead of 8-10.  We think she's just older and not as susceptible to common little kid illnesses.  Just like most 8 year olds!

Communication: Cicily signs about 5 signs consistently, but prefers not to go to the hard work of signing unless necessary.  Her most important things: family members and books.   She still says, "yeah", though it's less exuberant usually.  She still makes a fantastic no face and a beautiful smile for yes.  But the wait time it takes for you to ask her a question and then for her to respond appropriately is getting MUCH longer.  It takes 10 or more seconds to get a good response.

Digestion:  She's been vomiting randomly for many months and we're not sure why.  I suspect it's just her soft muscles growing weaker.

Overall:  Cicily has been taking medication (Artane) for over a year now to help with her rigid movements.  It's very helpful in allowing her body to bend at the waist.  She still moves constantly and always has bruises on her arms and legs because although she can't move accurately, it doesn't stop her from trying and experiencing life.

Emotional:  Chris and I have noticed Cicily is not as happy as she used to be.  If you've read above you can appreciate why that may be.  But she manages to smile far more than cry.  Yes, she's amazing.