Cicily's Adventures: 18 month old portraits

Saturday, April 19, 2008

18 month old portraits

Photography credits: Special thanks to Cicily's personal photographer Grandpa Courtney and also to talented Uncle Heath!!

8 comments:

Heath said...: My pleasure, always fun to snap away.; April 20, 2008 at 12:15 AM
Katy said...: Cicily is such a doll...I LOVE the outfit she is wearing!!; April 20, 2008 at 6:18 PM
Danielle said...: She is just so cute and full of life!! Have you been trimming her hair? It looks darling. How has her palate healed?; April 20, 2008 at 9:20 PM
Teri said...: I am glad I got to see these! She is so cute! "Full of life" is a good description danielle. Anyway, I like the change of template too!; April 22, 2008 at 12:54 PM
Anonymous said...: Janalyn,
Those pictures of Cicily are gorgeous. The colors and the baby both look great. You know how I love pictures. Thank you!
Aunt Alyn; April 23, 2008 at 6:45 PM
Lisa said...: Cicily is so cute and happy. Those pictures are darling. Good job Courtney and Heath..; April 28, 2008 at 12:27 PM
Chelsea said...: Those pictures turned out great! It was fun to see her again.; April 30, 2008 at 9:01 PM
Thomas said...: The pictures turned out so cute. I can't believe you got so many great shots. Cicily is so beautiful!; May 1, 2008 at 5:56 PM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.