Cicily went in yesterday to have her distraction device removed. It went very well. Dr. Singh removed everything completely internally (via small incisions inside her mouth) so Cicily will only have two small scars where her pins were sticking out. Yes, Dr. Singh is a surgical marvel! She also said Cicily's bone looked good and her bite is closed in the back of her mouth and only slightly open in the very front (3-4mms). So Cicily has an underbite, which is exactly what we wanted so she could have some room to grow into her jaw.
Overall the distraction was a huge success. What a relief!!!
We want to thank everyone again for helping us. This was certainly a "village" effort. We have such amazing family and friends, extremely talented doctors and have been so blessed. Thank you very much to all of you and to Dr. Singh and Dr. Glick.
Cicily has done quite well since surgery. When she woke up enough in recovery, she started signing "out", "home", "all done", and trying to take out her own I.V. We've decided she equates the I.V. coming out with leaving the hospital! She got so frustrated after signing and trying to leave, she held her breath until she passed out (2 times in fact!). So we were very glad Dr. Singh thought she would do ok coming home. Cicily slept very well last night in her bed and has been up and playing today.
Here are pictures of Cicily post surgery. Once again, I pull no punches, so don't look if you can't handle blood.
Last night at home - about 4 hours post-op 
The pin sites were left open a little so they could drain. And drain they did! I tried cleaning her up before bed, but she screamed and almost passed out again, so I decided a little blood wouldn't hurt for one night.
Today - looking pretty good! Quite a lot of swelling in her cheeks. It reminds us of 9 month old Cicily. And yes, the right side of her face is not moving much. A little disconcerting, but should go away in a few days.
7 comments:
What a brave, brave (yes I know I wrote it twice I could add 30 more but you get the idea) and awesome Mom you are!! And Cicily, what a tough little girl. We love you and we are so glad everything went okay. Can't wait to see Cicily smiling (with her whole face) soon.
WOW...I don't even know what to say...you are incredible...and she must be one tough kid!!!! Glad things are going well though.
Oh Cicily! Still smiling....such an amazing little girl! Can't wait to see her. We want to come by this weekend and give her a b-day gift!!!
Wow!! What a little trooper. I am glad she is doing good. It is always nice to have family and friends around to help when needed. I hope everyone else in your family is doing good.
Wow, what a little trooper she is! She is such a sweetheart. Hope she heals quickly.
love ya,
Wow, What an amazing little girl you have. So happy to see everything is going well. I think she looks great! Ava had the same issues with the right side of her face... She had a crooked smile for a while but it went away.
Lisa
Yea, yea, yea! She lookes SO good, well the second day! And Happy Birthday big 2 year old. She sure has gone through quite a lot to only be 2!!
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