Cicily's Adventures: Happy 2nd Birthday!!!

Monday, October 6, 2008

Happy 2nd Birthday!!!

I'm a big 2 year old girl!

Cicily had a good birthday inspite of having surgery 4 days earlier. She had a shared birthday cake with Grandpa Courtney the night before and on her actual birthday we went to the zoo with her cousins, played, and opened presents.

Maya, Birthday Girl, and Mom at the Zoo

Maya and I wrapped all of Cicily's presents in tissue paper this year, and she did a great job opening them all up.

5 comments:

Katy said...: Happy Birthday Cicily!!; October 7, 2008 at 5:15 AM
St. Jeor Family said...: Happy Birthday Cicily! She looks so cute. The 2nd birthday is so much fun!; October 7, 2008 at 7:50 AM
Teri said...: She really is growing up so big. It was fun to get to see her signing the animals at Grandma's. Big Girl!; October 7, 2008 at 8:51 AM
Robin said...: Happy Birthday Cicily!! We can't wait to meet you guys this weekend. I think Faith and Cicily could become great friends being only a week apart in age and with so much in common!
Love, Robin, Faith and family; October 7, 2008 at 10:34 AM
Lisa said...: Happy Birthday Cicily! I can't believe she is 2 already..; October 9, 2008 at 4:15 PM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.