Wednesday, July 8, 2009
After a horrible new "episode" on Friday, Cicily has been in the hospital and now has her trach back in. It's mostly due to her white matter issues, her "TCS airway issues" are perfectly fine. Discouraging, but she wants to live and we want her to keep making our family and others smile. The complete story will be written out at a later date.
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5 comments:
I'm so sorry to hear that. I was getting all excited when I read that you guys might be coming up to SLC. Ryan and I live in Lehi until November, not that you want to spend time with us on your vacation!
I have been checking for updates! She has been in my prayers. Please let me know if there is anything I can do!
Oh, I'm so sorry to hear Cicily had to be retrached and that you had another blue (i'm assuming) episode to deal with. I hope you are still able to go meet the new doc in Salt Lake and learn something helpful about her white matter. I'll be watching for your longer update when you find the time.
Robin
Im so sorry to hear about cicily having to be retrached, and I will continue to keep her in my prayers in hopes you will find the Dr to help with her white matter issue. She is such a strong little girl!
and shes full of life..not to mention BEAUTIFUL!! she makes me smile just looking at her pictures shes always so happy..
take care
Lisa
Avas mommy
I am so sorry to hear that she's in the hospital!!!! I hope things start going better and shes back home soon. You and your family are in our prayers.
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