Cicily FINALLY got to ride the bus to school today. She's been very excited all weekend to ride in her "bus chair" on the bus. We've been attempting to get her a stroller/wheelchair that is bus-safe since October. She can't sit on a bus seat alone because she's not steady enough, so she needs a chair that can tie down safely to the bus. The chair is medical equipment, so we've tried to order it through her medical supply company that supplies all her trach stuff. Due to an incredibly incompetent person on staff, the order was lost for a few months, and since January it's been approved by our private insurance but fought over by both of her government insurance companies. (I LOVE that we have those government run insurances for her, I really do, but why does everything go horribly wrong when the government gets involved??) So finally a couple weeks ago, Cicily's lovely teacher at school said someone donated this nice chair Cis could use until her insurance companies can finally decide to help a little girl like they should instead of arguing over who's responsible. (If I sound a little annoyed, it's because after I've spent over 60 or so hours on the phone over the last 4 months, Cicily still doesn't have what she needs.) But anyway, thanks to a great family for donating Cicily's loaner chair and to Cis' teacher Miss Marli for matching Cicily up with it!!!
On the bus this morning. After boarding the bus, Cis got a little nervous. I told her to smile for a picture, and she tried, but all she could muster were funny grimaces like this!
Cicily's all tied down and set to go. This is her wonderful nurse Tami that takes care of her at school. She helped Cicily to be happy about her first trip on the bus. When Cicily came home from school Maya, Lucy and I were waiting outside for her. She saw us through the window and smiled huge and waved. Then as we were eating lunch, we were talking about her riding the bus and she signed "phone" and "grandma". She wanted to call her Grandma and tell her about her bus ride.
8 comments:
That is awesome that someone donated that & not so awesome that your insurance has been taking forever!!! I'm sorrY! So cute that she signed Grandma & phone...my kids LOVE to call Grandma when something important happens:)
So cute! I love how when my kids are so excited they want to call Grandma to tell them...its so great to have such a great mom (both of us!).
I bet she is going to be excited for tomorrow to get to ride again!!
That is SO cute!! Such a grown up girl, riding the bus and all. Kinda cute she was so excited and then got nervous when it came down to it! See you soon!
I love this little girl and love that there are good people who do good things out there in this world that is sometimes hard and mean. Thank you to all of you who help Cicily and others!! May God bless you for your kindness and caring hearts.
Grandpa Norm
I love that little girl, all of you and all the kind people who help (and somehow manage not to lose paperwork!). So exciting for her!! She looks like such a big girl now! Big Hugs!!! J - thanks for your excellent commentary, too!
That is so cute! What a big girl. How fun that she wanted to tell grandma about her big adventure.
She's precious! What a wonderful gift God has given you.
HS
Hey Little Cis, looks like I get to ride the bus with you again next year. MPS just renewed my contract, I am looking forward to seeing you next fall. Love Tammy
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