ambulance to ER

Cicily received her 3rd escort to the ER via ambulance on April 12th. She had a wicked respiratory virus complete with fever for a few days. On that Tuesday she had her morning breathing treatment, breakfast, and then bath. In the bath she was very upset, so I washed her quick and took her out. As I was holding her in her towel she got really rigid and despondent. Her color turned almost grey and she started "posturing" as her nurse Michelle calls it. When we hooked up the pulse-ox to check her oxygen level it was down to 78% (bad is anything less than 90). So, I asked Michelle to call 911 so an ambulance could take her to the hospital. We could have transported her in our car with oxygen, but it wasn't worth something happening en-route. She was totally out of it in the ambulance, probably doesn't even remember the ride. I'll never forget sitting there watching her eyes glazed wondering if I'd ever see her smile again. In the ER they hooked her up to oxygen (as we had at home), ran some blood tests and took a chest x-ray. They all came back normal. (It's shocking to me how many of this girls' tests come back normal! She's very normal for a not-normal child!) Cicily was completely back to normal within a couple hours, so they sent us home with no clues as to what happened.


After talking to Cicily's neurologist's nurse, my best guess is she had a seizure. This is new ground for me and it was scary. Give me a plugged trach, pneumonia, a blocked airway of some sort and I can handle it. A seizure- what do I do with that? I guess the unknown is scary. And, I guess we'll get used to it and become pros like we always have in the past.


Later that same night, Cicily was smiling non-stop and asking to play with her chickens and her swing set.


Here's a picture of Cis giving Sophie a ride into the house on her chair after coming home from school yesterday. -Still smiling!