Cicily's Adventures: love

Saturday, November 19, 2011

love

Never as happy as with her sisters

4 comments:

Camille Hammond said...: I love how Sophie looks just like Chris, Maya like you, and to me Cicily looks like both, though I see more of Maya. In that picture of them with their front teeth missing I really think they look alike. They are all beautiful!; November 19, 2011 at 7:40 PM
St. Jeor Family said...: So cute!!! I just love it!; November 19, 2011 at 9:09 PM
Kami Milliron said...: Awww, such beautiful little girlies and such CUTE dresses !; November 30, 2011 at 7:42 AM
Grubbs Familly said...: LOVE this!; January 13, 2012 at 1:18 PM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.