Breathing

I've learned to greatly appreciate breaths being Cicily's Mom. I wish you all could see the tiny little breaths this girl is living on.  She's amazing. And I'm haunted knowing one of these bitty breaths will be her last.
I'll cherish this week I've had to snuggle my Cicily non stop.

And who would want to leave all this...

 Mommy reading books and being really good at knowing what I need. 

 My little sister brushing my teeth, putting eye drops in my eyes and helping me like I used to help her when she was a baby.

My big sister singing to me and spending time with me.  

And of course the most loving, entertaining Dad in the world.

Still here

Officially one week without food or water.  Getting more sleepy, but still attempting to sign a few times a day.

Heart of a lion

Cicily had a sleepier day today than yesterday.  She slept in until 10 am and then on and off again until noon.  While we were snuggling in our chair she made concerted efforts to sign.  As she didn't have the energy required to make a complete sign, I would tell her what her sisters were up to, get Lucy for a belly scratch or get books to read (as those are the most likely sign candidates).
Her breathing is still achingly slow, but apparently with the brave heart she has, 4-5 breaths a minute is all she needs.

Vigiling aint easy

I know many are checking continuously on Cicily, so I wanted to put something up here.  Truth is she's still breathing really slowly.  Sat in the chair all day today.  Had some great company.  She made a huge effort today to ask for something so we read books.  Then she asked for Sophie and Maya in turn tonight.
I think our little girl has just been so determined and fought so hard her whole life she doesn't even know how to let go.

Tuesday

 Didn't think you could survive long on 6 breaths/minute, but apparently Cicily can.  

Maybe she just needed one more book with Grandma?  Or one more joke with Dad?  Or one more snuggle with Mom?  Or one more fart joke from Soph?  Or one more story from Maya?
Don't worry, we've told her she can let go anytime.  We know her next life will be beautiful.  I can only imagine if she can do so much here without speaking, how much she'll be able to do to spread the love of Christ with a voice.

Vigil

Us girls got to spend all day snuggling and being taken care of by our Mom and Grandma.  Beautiful and heartbreaking.

Cicily is down to only 6-7 precious breaths per minute.  Last night was 9.