Cicily's Adventures: Photo Album

Thursday, May 15, 2008

Photo Album - 18 months

Girls' toenail painting party. Cicily and Maya even dressed up for this one!

Reading books together before nap time. Maya sometimes likes to "read" the books that she's memorized to Cicily and Cis, of course, loves it.

Cicily loves books! I clean these books up at least once a day and so far I love it!!

Cis walking with a walker! Our good friends let us borrow this cute little walker so Cicily can practice walking around. Shel likes being up on her feet. We're really focussing on just having her crawl a ton though because it's been SO good to strengthen her arm and back muscles and improve her balance.

3 comments:

Teri said...: She just looks so cute and mischevious there with her pile of books. I think I spelled that wrong. Oh well! Love you Cic!; May 16, 2008 at 2:35 PM
St. Jeor Family said...: She is just so cute! The messes are a joy to clean up (well, untell it is all of your clothing drawers thrown all over the bedroom). It is good for them though and it does keep them entertained. Got to love toddlers!; May 16, 2008 at 10:04 PM
Whitney said...: Maya's Sleeping Beauty dress is cute! I hope you got your toenails painted too :); May 17, 2008 at 11:51 AM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.