Wide open mouth! This picture was taken during the first 2 weeks wearing the helmet. Cicily was not closing her mouth at all when the helmet was off during this time. 
4 weeks of helmet and chin strap. Cicily now closes her mouth quite frequently, when her tongue is not in the way (which we're working on after talking to Dr. Glick on the consequences of tongue posture). 
Side view after 4 weeks in the helmet. Her mouth is open, but look at the jaw angle. It no longer goes straight down. She wears the helmet for 23 hours every day. We're on the 5th week now. It hasn't been the greatest 5 weeks. Cicily does quite well wearing the helmet once it's on actually. However, she cries and screams when it comes off and when it goes back on. We also had a dehydration episode that improved with a lot of water and Chris running to get some Gatorade at 3 am. We'll have another little celebration when we're done with the helmet in a few weeks!
It's another few weeks of keeping the end goal firmly locked in perspective. (The end goal being that Cicily will not only have a larger airway from growing her jaw approx. 1 inch while turning the screws, she will also be able to talk and eat better if her mouth can close and she can get decent tooth alignment.)
3 comments:
She looks so good! What a little trooper she is and what a patient mother you are. I hope to meet her one day.
Janalyn, I come to your site, not just to see how you guys are, but it always puts life in perspective for me...what a great family you have.
I just noticed the picture of you and Cicily on your profile...ADORABLE...almost made me cry.
Thanks for the pictures. Cicily is looking so good, but it is fun to have a reminder of where she has come from. You have sure done a great job with her. Of course Cicily is a fantastic girl and has shown great patience through this whole ordeal. We are proud of you all!!!!
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