Good Friends (at least their Moms hope so!) - Faith and Cicily Faith is one week older than Cicily, lives in Colorado and has Goldenhar Syndrome which is very similar to TCS. Faith also has a blog http://kargoll.blogspot.com/ It was so cute when they met Cicily smiled so huge at Faith and Faith gave Cicily a hug!
On Saturday night after the microtia conference, we went to a pizza party for all the families at the conference. I finally got to meet 3 Moms and their children that I've talked with on the Treacher Collins Syndrome Yahoo group. It was so great - like meeting instant long lost best friends! All 3 children were born within a few months of Cicily and have such similar issues. It was awesome to talk trachs, BAHAs, jaw distractions, food aversions, etc. and be completely understood. Hopefully we can continue to meet up as our kids grow.
Mom (Janalyn), Cicily, Faith, Mom (Robin)
Jacob, Jana, Tyler (twin brothers and their Mom), Teresa, Deena (Teresa's Mom), Cicily, Faith
Robin, Faith, Janalyn, Cicily, Aunt Dorothea, Yasmin
3 comments:
how fun. i'm so glad that you now have people that understand you and are going through the same things. it's always nice when you know that they really do understand. your awesome. love you and your family
I LOVE all the pictures! What cute friends!! I'm so glad you guys had so much fun and tht it was so informative.
Hey Janalyn,
Jana is my cousin on the Coons side. I just saw her in California. Her twin boys are so sweet. Anyways, I've been reading up on your blog and you are such a great mom! Cute family!
Love,
Michelle Coons King
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