Cicily's Adventures: Glasses Girl!

Friday, September 11, 2009

Glasses Girl!

10 comments:

Teri said...: So cute!; September 11, 2009 at 3:28 PM
Kami Milliron said...: OH MY HECK, she looks SO cute ! Aw, I just want to give her a squeeze : ); September 11, 2009 at 3:52 PM
Robin said...: Love this picture, she is adorable in glasses!! How are they staying on?
Hugs,
Robin; September 11, 2009 at 8:33 PM
Kristy said...: AAHHH! She is SO cute!! I love the frames. Great choice!; September 12, 2009 at 12:12 PM
shannon said...: So CUTE! I can't help but smile :); September 13, 2009 at 12:44 PM
Kristi @ Lolly Jane said...: so stylish! :); September 13, 2009 at 11:47 PM
Bharti Sumarajan said...: Hey Janalyn, i was waiting for this picture of cicly with glasses, she looks cute .Love that smile .
Thanks for leavinga comment onmy blog.; September 14, 2009 at 8:27 AM
Thomas said...: She is adorable in glasses! I'm glad that you found some that work for her. Is she leaving them on?; September 15, 2009 at 1:07 PM
Sue said...: SO CUTE!!! Can't wait to see them in person!!; September 16, 2009 at 10:45 AM
mashby said...: Oh SOOO cute!! I want her hair - its gorgeous!! :); September 18, 2009 at 10:05 AM

About Cicily

Cicily has degenerative hypomyelination (leukodystrophy) - no white matter coating her brain, which is terminal. For Cicily, this means she has limited motor control and "shakey" movements. It does not affect Cicily's cognitive abilities, as she communicates and learns at a standard level for her age.

Cicily also has Treacher Collins Syndrome. For Cicily this basically means she was born with a cleft palate, small lower jaw, small ears, and no ear canals.

Cis is such a tough girl though, and she's so easy going. She handles all of her difficulties so well. She's certainly up for her challenges! She continues to be a medical mystery and a joyful girl.