Tuesday this dude was at home to greet Cicily off the bus from school. Jordan and Cicily share a diagnosis (even if it is just one of Cicily's "diagnoses" that drs have given her to get stuff approved). It was awesome of Jordan to travel to spend the afternoon with Cis. Books are always the way to her heart!
Cicily continues to get a little more distant. She has more frequent staring spell seizures. Her respiratory symptoms are staying fairly steady. We're feeling more of the marathon here rather than a sprint to the finish. And as long as that face keeps smiling, a happy marathon is awesome.
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